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I was diagnosed with Parkinson’s Disease (PD) in July of 2020. This was after a year of seeing several specialists, having shoulder surgery, a couple MRI’s and a specialized brain scan to help us understand why I started to see a loss in control in my right drumming arm, difficulty with brushing teeth and difficulty in handwriting. I've since thrown myself into learning about the disease, participating in clinical trials & research efforts, getting involved with the Parkinson’s community….and most importantly---EXERCISING...which is the one thing known to slow the progression of the symptoms. I've been working hard to create my “team” to stay ahead of this disease and presently trying to figure out medications, nutrition and other lifestyle measures to lessen the PD symptoms. I've been slow about letting others know of my diagnosis but as April is Parkinson Awareness Month I've decided to spread the word! PD has a very long known history that can have a wide variable presentation and progression, with many people thinking it’s a disease of the elderly BUT that is so not the case.
Some key stats:
...Worldwide 10 million people live with Parkinson’s.
...50 million people live with the burden personally or through a loved one.
...1 in 15 people alive today will get Parkinson’s
...Over the last 25 years the number of people with Parkinson’s has doubled and is predicted to double again by 2040.
...Parkinson’s was discovered over 200 years ago. Since then humanity has put men on the moon, eradicated polio, changed HIV from a death sentence to a chronic illness, has mapped the human genome and discovered thousands of galaxies among the stars; and yet, has provided precious little beyond that one fifty-year-old drug for Parkinson’s.
This year, I am participating in The Michael J. Fox Foundation's (MJFF) Spring Virtual 5K/10K/Half Marathon. My plan is to walk 13 miles each day for a total of 39 miles the weekend of 5/7 through 5/9 with segments supported by the joining of family and friends.
More than 6 million people worldwide are living with Parkinson’s disease (PD) — a chronic neurodegenerative disorder. There is no known cure for Parkinson’s disease. As the world’s largest nonprofit funder of PD research, MJFF is working to change this. MJFF is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.
Your gift will make a real difference: 100 percent of the Spring Virtual 5K/10K/Half Marathon proceeds will go directly to The Michael J. Fox Foundation’s high-impact research programs.
Help me move a cure for Parkinson's disease over the finish line by making a donation today.
Thank you for your support!